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IEDN  

 

Welcome to the International Ectodermal Dysplasia Network.

A new version of the website is under construction and will be available shortly

This website has been designed for medical professionals and world leaders of the ED support organisations.

If you have come to this site as an individual who has ED please click on the world map, select your country and you will be taken to the nearest support organisation.

 

The International Ectodermal Dysplasia Network (IEDN) was established in 2007 and is an umbrella organisation which facilitates greater collaboration and co-operation between the Ectodermal Dysplasia organisation Leaders around the world working together to assimilate information.

The purpose of this site is to share information and knowledge of families with firsthand experience of the Ectodermal Dysplasias, general information and articles written by medical professionals; a network of international medical professionals, access to a database of information and access to all international ED organisation websites each of which contain more information.




 



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